Talk:Ondine's curse
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I removed the link to Ondine (play) from see also. I think it is appropriate on Ondine (mythology), but not here, this page is about a medical condition. Both are related to Ondine (mythology) but not really to eachother. --WS 23:31, 30 November 2005 (UTC)
- I agree that circumlocuted "see alsos" may be interesting, but are not helpful vis a vis the content of this page. The interested reader will be able to find it through the mythology article. JFW | T@lk 13:04, 1 December 2005 (UTC)
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[edit] Naming
Should this article be moved to Congenital Central Hypoventilation Syndrome? rarediseases.about.com suggests that it should, though I wouldn't call that authoritative. Perhaps Hypoventilation syndrome might be more correct as it covers a broader ranger (see this article as eMedicine. violet/riga (t) 20:16, 22 January 2006 (UTC)
- Please never capitalise disease entities if not proper names. Only journalists do that :-). Anyway, a googlefight will be helpful here. JFW | T@lk 21:50, 22 January 2006 (UTC)
- Yeah I'm sorry, that was the product of a lazy copy/paste! violet/riga (t) 21:55, 22 January 2006 (UTC)
[edit] paired-like homeobox 2b
??? Jclerman 21:31, 20 August 2006 (UTC)
- It's the 'PHOX2B' that was referenced in the article. Some more context is available at Pax genes. --Arcadian 22:00, 20 August 2006 (UTC)
[edit] Clarification
Most people with congenital Ondine's curse do not survive infancy, though they can be kept alive with a ventilator. This seems contradictory - if you can be kept alive, you're surviving. This could use some clarification as to what is meant.--RLent 19:21, 20 June 2007 (UTC)
[edit] "Prognosis"-accuracy?
other web sources indicate the condition is highly survivable, and that most people will live productive and near-normal lives. see, e.g. the cchs family network website at www.cchsnetwork.org, among others. this is the only place i have seen so far that suggests a high mortality rate in infancy.208.27.203.128 22:59, 20 June 2007 (UTC)
As someone with CCHS, the problem isn't surviving CCHS after being diagnosed, but being diagnosed at all. It's usually mistaken for a lighter form of sleep apnea, which cause the patient to be not on the ventilator enough. However, there are a few cases out there of a lighter form of CCHS, with those not being diagnosed for years, even decades, and surviving without the vent. The CCHS Network website should be able to direct you to sources for this, but I don't have links or references handy at the moment. 134.68.177.128 17:22, 25 September 2007 (UTC)
[edit] Also known as?
Is CCHS the same as congenital central alveolar hypoventilation syndrome? While the ICD-9 code for "Ondine's curse" gets you 348.8 - condition of brain, CCAHS has it's own code - 327.25.--209.7.195.158 (talk) 18:08, 4 June 2008 (UTC)
