Talk:Adiposis dolorosa

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I am updating this section to reflect the experience of current sufferers. The doctors have descibed the disease as occurring in an obese population of women, because they only got to see the disease after it had been active for several years. Comments appreciated.

A number of articles under this category don't belong, like the one about MSL. Any one mind if it is removed? --Dercum 20:57, 4 November 2006 (UTC)

[edit] Elder with this Disease

My mother is 80 years old and has been suffering with this for about 15 years. We feel it started almost unnoticeably, and is now extremely painful for her. It shows the most in her upper left arm as bumpy looking flesh. She is not overweight, she has lost a lot of weight, and yet this bumpy flesh remains. It is starting in her right arm as well, and we think it is in parts of her mid-section. She also has rheumatoid and osteo arthritis. She is very limited in what kind of medicines she can take. We have not found a doctor or anyone who is familiar with this disease. We think there may be other things happening to her that may be related, doctors cannot identify a lot of her pains. This disease doesn't show up on scans because it is fatty tissue and nerves that are affected.

ANY INFORMATION WOULD BE VERY WELCOME TO US, FROM ANYONE.

72.197.105.199 07:52, 12 March 2007 (UTC) L. in San Diego, CA

More of a forum discussion question: A listing of all the sites you can visit wil give the names of diseases that appear to along with Dercums Disease. Each person may have some or none of them. Usually they appear to your own biography of problems. List of websites: The Dercum Society - Describes the disease and suggests how to prepare for a doctor's visit if you believe you have Dercum's disease. Dercum's Disease - Discusses the symptoms, personal stories and research that has been done in the study of this disease. Dercum's Disease - Describes the disease and provides links to other sites. Dercum's Disease or Morbus (Mb) Dercum - Information from the Swedish Dercum's Society, courtesy of Dr. Fagher, one of the current experts in the disease. Dercum's Hope - Provides information and support about the disease. eMedicine: Adiposis Dolorosa - Provides an overview of diagnosis and clinical features. Lipomatosis Dolorosa - Describes the disease and suggests a possible dietary treatment. Maries Sida - This is an English page of a Swedish site with a description of the disease. My Illness - Personal account of one individual living with Dercum's Disease, and the path she took to diagnosis. Wikipedia - Adiposis Dolorosa - Offers a descriptive article of this rare disease, also known as Ander's disease or Dercum's disease. Yahoo! Groups: Dercums Disease - Discussion board provides a means of sharing experiences and ideas.

Dercum's Disease - From a patient - An account from Denmark, in Medical News Today. (January 9, 2004) Dercum´s disease - a frequently overlooked disease picture - German researchers present a case report describing methods used to treat the pain associated with this disease. (January 1, 2002) Portrait of a Medical Enigma - This is an article by Drs. Brorson and Fagher on Dercum's Disease. The first part of the article is a biography of Dr. Dercum followed by a detailed description of the disease. (April 15, 1996) Corticosteroid-Induced Juxta-articular Adiposis Dolorosa - Article copied from the Archives of Dermatology discusses a case of Dercum's Disease in the knee that was apparently caused by corticosteroid usage. (February 1, 1991)

 —Preceding unsigned comment added by 63.3.5.2 (talk) 06:39, 14 April 2008 (UTC) 

[edit] Conclusions?

I question the inclusion of this. It makes this sound more like an academic paper than an encyclopedia. Could this information be included in the previous section about psychotherapy? Mseliw 13:32, 19 May 2007 (UTC)

[edit] Start-class rating due to lack of references

This could easily be promoted to a B-class article if someone would find a few references. Surely there's information at the NIH's website, or in the Merck manual, or a good background source at a patient support group? WhatamIdoing (talk) 18:08, 19 November 2007 (UTC)