Talk:Proctalgia fugax
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Greetings all, This Talk page is for discussion to make the Proctalgia fugax page encyclopedic and NPOV. Please keep discussion on this page free of personal histories, remedies and stories and opinion. Ljmajer (talk) 06:56, 26 November 2007 (UTC)
Misconceptions corrected: Occurrences can be several times a month, not just 6 times a year. Length of episodes can be as much as 1hr 45 mins each not just up to 30 minutes. Episode comes at anytime during the day or night, not just at night.
Standing up and moving around increase the pain, not decrease it. This is not a mental issue, it is intense pains that starts in one area around the anal area and can move around the area of the anus to the complete opposite side during on episode.
Albuterol inhaler does seem to help decrease the pain and duration, sometimes.
I hope someone out there has a cure. If so, let us know to save us from this horrible problem.
Corrections Concurred:
Can and will occur at any time of day. Like right before you leave for work... when you don't have time to deal with it. Can also last for a couple hours, though, but usually doesn't if you have the time to sit still on the toilet while keeping your bowels open (trying to defecate). That really seems to help more than anything else imagineable, and keeps the pain much less sharp.
Corrections contradicted: For me, it is often best to get up and pace during a episode. For 6 years I kept a diary of my episodes. I could not correlate them with foods eaten, or stress level, or mood... not anything that I could detect.
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[edit] Additional remedies
Many discussions on medical and/or sexual health forums, state that the only way that they have gained relief is via masturbation/orgasm. my experience with this condition usually last for 10 or 15 minutes and sitting on the toilet trying to defecate or just keeping the pressure on the bowel definitely helps. i have been getting these pains for approximately 25 yrs and have only just discovered what they are ...
Corrections Concurred:
Pain is too bad for orgasm to be attempted. I agree with trying to defecate, but sometimes digital pressure directly on the area externally from the perineal area.
It occurs with me within two hours of falling asleep. It starts out where I feel the pain in a dream and it wakes me up. I have only had this happen once during the daytime. This is not encouraging to know that this will continue to occur and no cure exisits except for trying to defecate to help relax the muscles. I usually take a couple ibuprophen to help ease the pain. The pain usually lasts 20-30 minutes. It also helps me to practice those breathing exercises I learned in my child birth classes to help myself focus and relax.
[edit] Additional comments/remedies
I am not sure how to contribute here, so bear with me. I am another person who has been unable to sleep from this. I have tried several of the suggested remedies with only fleeting relief, or in the case of medication, relief just took far too long. However I have found what gives me IMMEDIATE relief. Simply insert a suitable lubricated dildo. The pain went immediately and I was able to sleep. Some time later I awake with mild discomfort from the dildo, remove it, and immediately fall asleep again. What a discovery! So for relief I can recommend going to a sex shop and buying a suitable "but plug" and lubricant. I'm serious. Can somebody add this relief option to the main Wiki article; I don't know how. Thanks. Garamut (talk) 00:36, 7 April 2008 (UTC)
I have had the occurrence of this pain for about 15 years now. It seemed to begin after a bout of salmonella, but that could just be a coincidence. However, I am pretty much guaranteed an episode a day or so after having had a bout of diarrhea, and therefore having cleaned out my bowels and will occur during the day (sorry, for the details). However, 9 out of ten times it does wake me from a sound sleep (often accompanied with a erection), lasting for around 15 minutes. On at least 3 occasions the pain was so severe that I passed out which was very scary. I have learned to get through these episodes through relaxation techniques and by heating up a heating pad and placing it on and around my abdomen (the kind of heating pad that is filled with beans and you can microwave). I also recommend getting a prescription for Xanax which I will sometimes take 1/2 tablet to relax and get back to sleep faster. I have mentioned it to at least 3 doctors, and they had never heard of Proctalgia fugax.
Bigrhed 17:02, 23 August 2007 (UTC)
I have found great help for this terrible condition by drinking a large glass of ice water when I get an attack. I believe this activates the gastrocolic reflex, which moves stool from the colon down to the rectum, stretching out the levator muscle, the same way one relieves a cramp in a leg muscle by stretching it. A high fiber diet in general will help facilitate this. I believe this explains the experience of another discussant, who experiences attacks after episodes of diarrhea, which would empty out the colon.
I have also found that pacing will make an attack more bearable, whereas lying or sitting will increase the pain. 76.183.119.161 02:39, 19 September 2007 (UTC)
Hi,
I have the pain for about 6 years. I have to lay down and take all my cloths off during the pain. I had attacks during all hours of the day, one time when I was riding my motorcycle to work. I got some pills from my doc, I'll try them and write back if they help.
I get the attack also after having sex, and it can last up to 3 hours on and off. I get one attack for every 3 months in avarage.
—Preceding unsigned comment added by 216.103.247.242 (talk) 22:28, 3 December 2007 (UTC)
[edit] Women vs. Men
The article said that a study had shown the condition to be more common in men, but the source actually found 69% of patients to be female. I went ahead and made the change. Calindigo (talk) 13:37, 19 March 2008 (UTC)
[edit] Help for Proctalgia Fugax
I don't know if this will help you, but I have suffered for 30 years with this condition...it would absolutely double me over...do me in...believe me...I have tried EVERYTHING...I have read some of your comments and I have tried all of those and then some. Well...this one worked. My wife of 28 years suggested that I try her nerve pill..Wellbrutrin XL...she takes it for a spastic colon...and since proctalgia fugax is a spastic muscle, I thought I'd try it...THANK GOD I LET HER TALK ME INTO IT...IT'S GONE...ALLLLLL GONE. For the first time in 30 years I don't have to worry about it anymore. I tried 150mg. and it worked but I could still feel a slight ache...my doctor suggested I try 300mg. and it's gone...allllll gone. Try it...the worst thing that could happen is that it doesn't work...but it's worth a try.Crappiekiller (talk) 02:31, 21 March 2008 (UTC)
---Just found out-- I just got out of the hospital yesterday having gone in for horrific pain and stayed in a week. A colorectal surgeon made the diagnosis. I have been fighting pain on and off for about a year, and it got de-abilitating within the last two months, and finally went to a doctor. They currently have me on oxycodone, flexiril and a fentanyl patch. These take the pain away, but leave me to loopy to function. I am going to ask my doctor about alternative medicines that do not make me loopy! However, my pain without the meds is between a 7 and a 9. I have episodes of pain for 3-4 hours at a time and AI have these 3-4 times a day. Have them both at day and night. Can anyone recommend anything that they are taking?
Scott —Preceding unsigned comment added by 216.152.182.116 (talk) 01:59, 13 May 2008 (UTC)
Effexor worked for me. I had monthly episodes of P.F. for many years, then it went away. I didn't realize that it was the Effexor that made it go away until, after 5 years of taking it, I stopped the effexor and the P.F. came back. But effexor has side effects, especially on withdrawal, so consider the recommendation above for wellbutrin. —Preceding unsigned comment added by 67.241.23.251 (talk) 05:35, 15 May 2008 (UTC)

