Arjunuday
From Wikipedia, the free encyclopedia
 |
This article or section has multiple issues. Please help improve the article or discuss these issues on the talk page.
|
Arjunuday , born 25 June 2006, with congenital defects Anorectal Malformation is a true inspiration to the soceity . He under gone 8 correction surgeries in 1st year of life. Arjunuday’s parents came to know about various unofficial stories from the doctors, nurses and few hospital staff about the reason for high death rate in this problem is that these new born may be killed at birth or later stage as parents are not able to cop up with the trauma and continuously leakage of stool directly from the stomach colostomy and they are looked upon as expensive to maintain and survival is also not guaranteed. The killing takes crude forms :smothering a new-born baby, feeding it a whole grain of rice or the poisonous juice of a local plant or simply stopping the treatment. [1]
Unfortunately In India there is lack of active NGO , Society , Govt. Department , Councilor to help the baby or traumatized parents .Apart from rare governments support, there is no website or information about congenital birth defects.Details available are for the doctors for study or research purpose , that are too complicated for a common person to understand .
Finally parents of Arjunuday decided to start this support group with the help of over 50 pediatric surgeons and doctors of AIIMS , Sir Gangaram Hospital, Apollo , Lilavati , MAMC and various other hospitals of India and Abroad . The response for the doctors are over whelming and parents strongly believe that but putting little efforts they shall be able to reduce death rate of these little ones .
Arjunuday inspired parents to start NGO for Congenital Birth Defects and Registry of Rare Blood Donor .
Arjunuday inspire parents to start NGO.[2]
[edit] Early days
Arjunuday was born as a sibling to healthy sister Lavanya (6) . Mummy Papa planned second baby to give a company to their daughter. It was a full term pregnancy with out any complication. Baby was born at a Nursing home of south delhi through successful caesarian delivery . Pediatrician present in the operation theater diagnosed baby with
Anorectal malformation– High
He was immediately shifted to a very reputed and famous private hospital of New Delhi and successfully operated and colostomy done. Duration of stay was 14 days .
After spending 5 days at home Arjunuday had recurring mild fever and diagnosed with urine infection and again admitted to hospital , This time stay was for 21 days .
Life was not easy this time also , after spending only 4 days at home Arjunuday was readmitted to the hospital . Now urine fungal UTI was the cause of the stay for 5 days .
More shocks were waiting for the family and again after few days Arjunuday was admitted to the hospital with urine infection . He was diagnosed with Colovesical Fistula by Pediatric Surgeon.Hospital stay was 10 days this time.
Arjunuday again had Urine Infection in spite of daily oral dose of antibiotic , Doctor advise him Oral Trxim – O for 2 weeks and infection was over now without any IV antibiotic .
Arjunuday readmitted to the hospital again for pull through operation (creating opening of anus and repairing of connection between rectum and [[bladder and he was successfully operated . He developed urinary retention and discharged along with catheter .
Catheter was removed after 10 days , Arjunuday was able to urinate with support from parents , However He had a mild fever and diagnosed with urine track infection . Doctor advise him Oral Antibiotic as his another surgery was planned for colostomy closure
Arjunuday was readmitted to the hospital and colostomy closure was done successfully , This was the worst phase for the poor baby as he was on complete fasting ( without even drop of water ) for 4 days . This time the stay was 8 days .
Unfortunately baby had mild fever after 3 days of hospital discharge and doctors advise parents to get DMSA – Renal and Repeat MCU done on the baby .
DMSA Renal shows cortical scaring on left kidney , Peripheral contour is irregular with multiple photopenic defects at the superior pole at the mid lateral border .
MCU shows Grade III / IV refux on both sides .
As per a journal published by well known professors of pediatric nephrology we noted following important lines :-
Children with renal scarring should receive continued care twice a year through adulthood . Patients are monitored for physical growth and blood pressure. Investigations include urinalysis for protenuria every six months and yearly estimation of blood level of urea and creatinine . Yearly examinations are done to monitor renal growth .
After 7 correction surgeries, 9 hospital stays and over a million expenses , Arjunuday is still under going through following follow-ups
[[AIIMS for his Renal Functions , Urine Reflux and Blood Pressure Monitoring
LNJP Hospital for Anorectal Malformation , Continuous Severe Diarrhea, Tracheo-esophageal fistula and Anal Mucosal Prolapse
Baijerbai Wadia Hospital for Children, Mumbai for Fecal Incontinence
Dr. Bela Sethi’s Physical Therapy Clinic, NDSE , New Delhi for Anal Re-education Therapy daily for continues 3 months. ([[Physiotherapy for fecal incontinence secondary to anorectal malformation
